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Privacy Policy

The Brain Bank for Autism & Related Developmental Research (BBA) is committed to protecting your privacy when you use our on-line form, correspond with us, complete any of our printed forms or telephone our offices. In this policy we explain how and why we collect your information, what we do with it and what controls you have over our use of it.

Please do refer back to this Privacy Policy regularly to review any amendments which we may have made.

Any questions regarding our Privacy Policy should be directed to Brenda Nally at BBA either by email or by telephone on the number above.

Your acceptance of these Privacy Statement terms

By submitting your personal information to us, either by webform, telephone, written communication or any of our printed forms, you unconditionally agree to be bound by this Privacy Policy.

What data do we collect and how do we use it?

BBA collects and processes information about you in order to:

  • Process your offer of support for brain research
  • Record your intention to donate your brain tissue
  • To send you information on BBA and its work

You may be asked, either when you register with us, or at other times, for information about yourself, such as your name, e-mail address, postal address and telephone number.  You may also be asked to share with us details of your next of kin.

You are under no obligation to provide this information, but if you don't then we may not be able to provide you with information that you have requested.

Non personal information

We may automatically collect non-personal information about you such as the type of internet browsers you use or the site from which you linked to our Web Sites.  You cannot be identified from this information and it is only used to assist us in providing an effective information service on our Website.

Use of Cookies

We do not routinely use cookes in our website.

What we will NOT do with your information

BBA me will not share, sell or rent your personal information to third parties unless we are required to do so by law or if it believes that such action is necessary to protect and defend the rights, property or personal safety of BBA and its website, visitors to the website and anyone who has registered with our Brain Bank.

Our Web Site contains links to the sites of third parties.  When you visit these sites, we suggest that you read their privacy policies.  BBA is not responsible for the privacy policies or the content of such sites. 


BBA places a great importance on the security of all information associated with our supporters. We have security measures in place to attempt to protect against the loss, misuse and alteration of customer data under our control.  For example, our security and privacy policies are periodically reviewed and enhanced as necessary and only authorised personnel have access to user information. While we cannot ensure or guarantee that loss, misuse or alteration of data will not occur, we use our best efforts to prevent this.

Where is the information stored?

Information which you submit to us is stored on a computer located in the UK. This is necessary in order to process your details and to send you any information you have requested. 


Please email any questions, concerns or comments you have about our Privacy Policy

Brain Bank for Autism & Related Developmental Research


Message from our supporters

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Urgent brain tissue donations

To speak to our donations team please telephone us on

0800 089 0707